Blueprint to Close the Women%E2%80%99s Health Gap 2025

Definition: Number of patient registries that exist across countries for conditions Source: Press search, Forum working groups Period: Most recent year available Patient registries are observational studies that collect and store information about patients with conditions over time. They are important centres of data and knowledge, as they can inform on symptoms relating to conditions, medication use, use of care and other patient-reported outcomes. By establishing national patient registries for different conditions, enhanced care can be delivered to patients, with the hope of better patient outcomes. The current number of patient registries for endometriosis and for breast cancer were researched globally. Using input from the experts in Forum working groups, the team was able to identify these patient registries and validate sources across regions. In future years, an additional number of conditions will likely be included and further countries included.3.2 Metric 2: Number of patient registries Definition: Number of endometriosis centres of excellence globally Source: Press search, Forum working groups Period: Most recent year available Centres of excellence are one-stop locations for the diagnosis and treatment for patients with suspected endometriosis. They are a core way for women with endometriosis to receive consistent, evidence-based care, and are cost-effective centres of research and training. Centres of excellence were identified by the MHI and Forum teams in 15 countries.3.3 Metric 3: Number of centres of excellence – endometriosis Definition: Number of countries with menopause workplace guidance Source: Press search, Forum working groups Period: Most recent year available Workplace policies are an important part of improving menstrual health. Establishing workplace guidance on menopause could support awareness of menopause, help to retain top talent in the workforce and improve lifestyle interventions for menopause. The number of national guidelines for menopause in different countries was researched. Only the UK has an established guideline with its Equality and Human Rights Commission’s Menopause in the Workplace: Guidance for Employers and this policy is referenced as a potential avenue for other countries to establish national guidelines.3.4 Metric 4: Number of countries with published workplace guidance Blueprint to Close the Women’s Health Gap: How to Improve Lives and Economies for All 44