Endnotes 1. Capital Markets. (n.d.). The healthcare data explosion. Retrieved November 20, 2024, from https://www.rbccm.com/en/ gib/healthcare/episode/the_healthcare_data_explosion 2. National Academy of Medicine. (n.d.). Sharing health data: The why, the will, the way forward. Retrieved November 20, 2024, from https://nam.edu/sharing-health-data-the-why-the-will-the-way-forward/ 3. Organisation for Economic Co-operation and Development. (2019, November 21). Health in the 21st century: The OECD health report. https://www.oecd.org/en/publications/health-in-the-21st-century_e3b23f8e-en.html 4. World Health Organization (WHO). (2023, September 11). Patient safety. https://www.who.int/news-room/fact-sheets/ detail/patient-safety 5. Intelligent Data Systems. (2022, July 10). The impact of data quality problems in healthcare. https://intelligent-ds.com/ blog/data-quality-problems-in-healthcare#:~:text=The%20impact%20of%20poor%20data%20quality%20can,be%20 the%20difference%20between%20life%20and%20death 6. World Health Organization (WHO). (2024, September 11). Patient safety. https://www.who.int/news-room/fact-sheets/ detail/patient-safety 7. Ibid. 8. Ibid. 9. World Economic Forum. (2023, June 26). Scaling smart solutions with AI in health: Unlocking impact on high potential use cases. https://www.weforum.org/publications/scaling-smart-solutions-with-ai-in-health-unlocking-impact-on-high- potential-use-cases/ 10. Whiting, K., & Pomeroy, R. (2023, November 14). What is value-based healthcare? Two experts explain. World Economic Forum. https://www.weforum.org/stories/2023/11/what-is-value-based-healthcare-two-experts-explain/ 11. World Economic Forum. (2024, September 17). Data in healthcare: Standardization, governance and sharing can cut global mortality. https://www.weforum.org/stories/2024/09/data-in-healthcare-standardization-governance-and-sharing- can-cut-global-mortality/ 12. Valdes, I., Kibbe, D., Tolleson, G., Kunik, M., & Peterson, L. A. (2003). Metcalfe’s law predicts reduced power of electronic medical record software. AMIA Annual Symposium Proceedings Archive. https://pmc.ncbi.nlm.nih.gov/articles/ PMC1480183/ 13. World Economic Forum. (2023). Scaling smart solutions with AI in health: Unlocking impact on high-potential use case s. https://www.weforum.org/publications/scaling-smart-solutions-with-ai-in-health-unlocking-impact-on-high-potential-use- cases/#:~:text=Cardiovascular%20diseases%20account%20for%20most,and%20diabetes%20(1.5%20million) 14. UAE. (2024, July 2). The Emirati Genome Programme. https://u.ae/en/information-and-services/health-and-fitness/ research-in-the-field-of-health/the-emirati-genome-programme 15. European Commission. (n.d.). European “1+ Million Genomes” initiative. Retrieved November 20, 2024, from https://digital-strategy.ec.europa.eu/en/policies/1-million-genomes 16. Wouters, O. J., McKee, M, & Luyten, J. (2020). Estimated research and development investment needed to bring a new medicine to market 2009–2018. JAMA, 323(9), 844–853. https://pubmed.ncbi.nlm.nih.gov/32125404/ 17. National Institute of Diabetes and Digestive and Kidney Diseases (NIH). (2021, October). Artificial pancreas. https://www.niddk.nih.gov/health-information/diabetes/overview/managing-diabetes/artificial-pancreas 18. Lovejoy, J. C. (2022, December 7). Using data to live longer, healthier lives. Scientific American. https://www.scientificamerican.com/custom-media/the-new-science-of-wellness/using-data-to-live-longer-healthier-lives/ 19. IE Center for the Governance of Change. (2023). Data collaboratives: Enabling a healthy data economy through partnerships. https://static.ie.edu/CGC/10_Verhulst_DataCollaboratives_2023.pdf 20. GovLab. (n.d.). Data collaboratives: Creating public value by exchanging data. Retrieved November 20, 2024, from https://datacollaboratives.org/ 21. Lindquist, M. (2024, June 24). Interoperability in healthcare explained. Oracle. https://www.oracle.com/health/ interoperability-healthcare/ 22. e-Estonia. (n.d.). X-Road – interoperability services. Retrieved November 20, 2024, from https://e-estonia.com/solutions/ x-road-interoperability-services/x-road/ 23. World Economic Forum. (2024, May 23). The economic rationale for a global commitment to invest in oral health. https://www.weforum.org/publications/the-economic-rationale-for-a-global-commitment-to-invest-in-oral-health/ 24. Pan American Health Organization (PAHO). (2024, July 30). Transforming regional healthcare through the Pan-American Highway for Digital Health. https://www.paho.org/en/news/30-7-2024-transforming-regional-healthcare-through-pan- american-highway-digital-health 25. G20. (2024, June 3). Digital health: Access to technologies under discussion at G20. https://www.g20.org/en/news/ digital-health-access-to-technologies-under-discussion-at-g20 Better Together: Building a Global Health Network Economy through Data Collaboration 27

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