Making Rare Diseases Count 2026

Advances in life expectancy for patients with treatable rare diseases FIGURE 4 0510305070+ 60 40 20 Year of birthApproximate life expectancy at birth (years) 1950 1960 1970 1980 1990 2000 2010 2020~ 50-year increase~ 60-year increase ~ 10-year increase Cystic fibrosis (CF) Duchenne muscular dystrophy (DMD) Sickle cell disease (SCD) Note: Data represents approximate averages from multiple published studies and sources Source: Deloitte analysis Making Rare Diseases Count: How Better Data Can Unlock a Multitrillion-Dollar Opportunity 8